Lucy decided she wanted to get up at 5.30am today, because she felt like it. After trying to get back to sleep, she started having a focal seizure (where she is conscious, but her hind legs spasm from localised areas being affected in the brain). She's okay, but every 5 seconds or so she bursts into a jump or a run, and around the house she tends to end up face planting walls or objects and gets herself tangled up in god knows what. So I thought I would stay up. She's been going for about 45 minutes now, and is trying to go back to sleep.
My original subject line was titled 'So tired' but after a moments consideration, I realised I wasn't. Which was a nice little moment, because it means the medication I have been on really has helped. 3 months ago, there was no way I would have been up at this time of the day. If I had managed to do that, I would have been a zombie. I am meeting a friend today to take some photos, so it can only be good that I have lots of time to prepare and get my stuff together, haha.
Because it's Christmas, and lots of good things happen at this time of year, the fridge has decided to die. We noticed last night, and this morning when making my coffee, realised that it was still not working. Lucky, I think mum and dad have a spare one out in the garage somewhere.
I had to joke to the hubby that it was his bad luck encroaching.
Last night, Lucy managed 7 seizures within a 24 hour period - a new record. 2 focal seizures and the rest grand mal. I was sitting on the internets, looking for new information (as you do, even though you've read everything a million times) and I couldn't help but think that most of the websites look awful, and they're so hard to follow. It's great that people want to share the information, but sometimes I wish it was more common knowledge that there are better ways of doing your own website. It does not have to be a page of 10pt text on a maroon background.
Because I was up so early, I saw part of the sunrise. I was too distracted to get my camera, but I might get up early tomorrow and take some photos. The joys of being in the country - it's not spoiled by buildings or pollution. Almost as good as the sunrise over Christmas Island, 30,000 feet in the air.
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